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About Us

Better Future 4 U is a global patient advocacy organization dedicated to fundraising for research and treatment of the rare genetic disorder, HNRNPU. Our mission is to promote awareness of this rare genetic disorder and to provide support for individuals and families affected by it. We believe that by working together, we can find a cure for HNRNPU and improve the lives of those who are impacted by it.

 

BF4U's board members are committed to making positive changes for children and families affected by HNRNPU. Those who serve on our board of directors do so on a voluntary basis, without compensation. Our board of directors and experts work collaboratively with an inclusive range of locations and impact in mind. Meet the members behind our mission by clicking here.


Better Future 4 U is pending 501(c)3 

We believe in a future where individuals and families affected by HNRNPU have access to the best care and support, and where a treatment for this rare genetic disorder is found.

Our Mission

Our Mission

Our mission is to promote awareness of HNRNPU and to provide support for individuals and families affected by it. We aim to improve the lives of those impacted by this rare genetic disorder by fundraising for research and treatment, and by providing resources and support to patients and their families.

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Our Vision

Our vision is a future where individuals and families affected by HNRNPU have access to the best care and support, and where a cure for this rare genetic disorder is found. We believe that by working together, we can give these individuals long term independence. With your help we can make this vision a reality.

Support Our Cause

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