In Loving Memory
At Better Future 4 U, we hold space for the families who have experienced the unimaginable loss of a child due to HNRNPU-related neurodevelopmental disorder. Whether sudden or anticipated, the loss of a loved one is deeply felt across our entire community.
We see you. We grieve with you. And we remember your child—with love, with honor, and with commitment.
For Families Navigating Loss
There’s no roadmap for this. But there are hands to hold.
Driving Research, Creating Legacy
Families may choose to honor their child’s life by supporting HNRNPU research in their name. These tributes help build a legacy of hope for others walking this road.
If you’d like to learn more about funding a research initiative or awareness campaign in memory of your child, please email us:
info@bf4u.org
A Space to Honor
We invite families to share a tribute, photo, or memory of their child to be included in our Remembrance Gallery. Each life touched by HNRNPU is unique and meaningful.
Submit a Tribute
We Remember
If you have lost a child or loved one to HNRNPU-related disorder and would like them included in our memorial efforts, please know it is entirely your choice and always on your terms. We’re here when you’re ready.
š Forever a part of the HNRNPU family.
Honoring Their Light
Children diagnosed with HNRNPU face many medical challenges—among them, complex epilepsy, which can carry an increased risk of SUDEP (Sudden Unexpected Death in Epilepsy). Though SUDEP is rare, the risk is real—and for some of our families, this is how their child's story ended far too soon.
We are committed to sharing these truths with care, raising awareness, and investing in research that can lead to better monitoring, safer treatments, and ultimately—prevention.
If you’ve lost a child or loved one, you are not alone. We are here to remember with you, support you, and walk beside you through the pain and beyond.